Monday, February 15, 2010

In the News...All this in Just the Last Few Days

Since I'm a daily follower of the kidney transplant community, I read these stories every day. But many people don't realize the amazing events that are occurring day after day. Here's a brief look at the news of the past few days

• Heart recipient now reciving kidney from mom.

• In New Jersey, a 22 month old toddler gets kidney, her father donates to an L.A. man in five way paired kidney exchange from the National Kidney Registry. www.kidneyregistry.org

• The 69-year-old Stoughton man underwent a successful kidney transplant on Thursday at Massachusetts General Hospital in Boston, thanks to the kindness and generosity of someone he met via the Internet.

• Woman who wasn’t compatible with nephew wanted to donate anyway…ends up connecting with a man through the Web site www.matchingdonors.com

• UCSF and Hackensack University Medical Center complete three more paired exchange transplants. This swap included our youngest transplant recipient (a one year old baby) and one of our oldest recipients (a 75 year old man). This chain was started at Cornell in September and is on its 4th cluster.

• 1-year-old girl becomes youngest recipient in kidney donation chain.

• A USC surgeon, Dr. Inderbir Gill, removed fathers kidney, for his 8 year old son, though his belly button, a procedure that Gill pioneered.

• Three men and their moms are celebrating Valentine's Day with the gift of life. The men all stepped up to save their mothers' lives by donating a kidney.

• Customer donates kidney to grocery store clerk.

There are on average, 16 living kidney transplants EVERY DAY. These are the NORM, not the exception in the living transplant community.



Harvey Mysel is a kidney transplant recipient and Founder of the Living Kidney Donors Network, a nonprofit organization that offers Workshops and Webinars to educate people in need of a kidney transplant about living kidney donation and help prepare them to effectively communicate their need to family members and friends. The Living Kidney Donors Network website is: www.lkdn.org and Harvey could be reached at: harvey@lkdn.org or follow him on Twitter www.twitter.com/harveymysel

Monday, February 8, 2010

A Lesson to Learn about Living Kidney Donation

The following is a story that appeared in the Chicago Tribune on February 7, 2010.

Comment: This story may sound unique, however, different donor and recipient versions, occur more than 16 times, every day.

No one knows where a living kidney donor will come from, but they can only offer to donate if they are aware of someone's need. Here's what could happen when you let people know about your need for a kidney transplant.



Dan Coyne had the surprise all planned out: Near the end of Myra dela Vega's Friday night shift as a cashier at Jewel-Osco in Evanston, his children would buy some groceries and hand her a card. Inside would be the unexpected news that Coyne could donate one of his kidneys to dela Vega, who is suffering from renal failure.

But dela Vega, 49, who looked puzzled by the card, didn't open it. Instead, Coyne emerged from hiding and blurted out the news himself.

"Oh! Oh!" dela Vega said, covering her mouth as her knees started to buckle. Her eyes filled with tears. Later, she explained: "It's just so overwhelming to think someone is giving you an organ."

Nearly half of all the transplants in the U.S. are from living donors. Some are related by blood; others donate to a general pool; some, like Coyne, simply have an emotional connection with the recipient.

Currently, more than 105,596 people are waiting for an organ, according to the United Network for Organ Sharing registry. In Illinois, more than 4,600 people need transplants. Living donors, who are increasing in number every year, can lessen the gap.

Kidneys are the organ most commonly involved in living-donor transplants, because the body can function normally with only one of the fist-size organs.

The average wait for a kidney from a deceased donor in the Chicago region is about five years, said Dr. John Friedewald, a transplant nephrologist at Northwestern Memorial Hospital, where dela Vega will have her operation March 26. Dela Vega had been waiting more than a year.

Half of living-donor kidneys transplanted now will still function in 20 years, whereas half of kidneys from deceased donors fail in the first 10 years, Friedewald said. Patients also experience significantly less pain, a shorter hospital stay and can return to normal life much faster.

Coyne, an elementary school social worker, met dela Vega two years ago while grocery shopping. They struck up a friendship, and when he learned she was starting dialysis for kidney failure, he asked whether she would consider him as a donor.

Dela Vega, an Evanston single mom of two teenage children, had hoped her sister, who was coming in from the Philippines, could donate. When they learned she couldn't, Coyne repeated his offer. Last Wednesday, he was notified his blood and tissues were a match.

Initially Coyne's wife, Emily, had reservations about her husband's gift. But after seeing how much he wanted to do it, she relented. "I just hope he's OK with one," said Emily, a nurse.

Though any surgical procedure carries risk, studies have shown that donors' remaining kidney continues to function normally and will compensate for the loss. "The key is that the donor is in good health beforehand," said Friedewald.

"Life expectancy is the same and there's no increased risk of kidney disease for the donor," he added.

Coyne doesn't seem worried. His decision, he said, is a way to teach his children there are many ways to give.

"If you think how tenuous and difficult life can be for people around the world, it's nothing," said Coyne, referring to the earthquake in Haiti. "There is a risk of death, but the drive I make to work is riskier than the procedure."

The diminutive and spirited dela Vega, meanwhile, has already told Jewel-Osco store manager Paul Olson her future plans.

"On March 26, I'm on vacation," she yelled across the store after finally opening Coyne's handwritten invitation to Northwestern's Kovler Organ Transplantation Center. "Whether you like it or not!"

jdeardorff@tribune.com
Copyright © 2010, Chicago Tribune



Harvey Mysel is a kidney transplant recipient and Founder of the Living Kidney Donors Network, a nonprofit organization that offers Workshops and Webinars to educate people in need of a kidney transplant about living kidney donation and help prepare them to effectively communicate their need to family members and friends. The Living Kidney Donors Network website is: www.lkdn.org and Harvey could be reached at: harvey@lkdn.org or follow him on Twitter www.twitter.com/harveymysel