Thursday, October 28, 2010

(Here is Angela Stimpson's blog, who is a recent altruistic donor)

Tuesday, October 26, 2010
2,861 miles away and alive, in julia
My physical recovery from my surgery has been going so smoothly, and improving at a much faster rate than I had anticipated. I'm still feeling lethargic, but it's not stopping me from pushing forward. I'm running again - well, skipping/shuffling/scooting, is more like it. It's coming back, but I am taking it easy and only increasing my time/pace minimally to avoid any setbacks.

My emotional state since my donation has been better than expected as well. I feel fantastic, and probably more alive than ever. I feel like my spirit is lifted, my heart and soul is fulfilled. To be honest, I never really felt like this surgery was a 'big deal'. Yes, it was a pain in the a** getting stuck with a needle a thousand times, and all the emails, phone calls and organization of the logistics during this journey was quite honestly, just annoying. But that's it. No. Big. Deal. I hopped on the table in the O.R. for my surgery, I awoke hours later, I rested for a week and now I'm at close to 100%, or at least I feel like I am.

The past week or so I have been thinking more about my recipient. Wondering...How she was doing? Was she healing, or was she suffering setbacks? What about her new New York kidney - was it living up to its expectations, or was it checking out once in a while for a Pinot Grigio and a glance at Derek suffering the loss during his last game of the season? I have heard nothing from her transplant coordinator and decided that I would give her a call in about two weeks to see if she could 'check in' on my lil' kidney. She mentioned to me in a phone call the day after my surgery, that the recipient wanted to contact me and would do so by letter. Just like my grandmother waiting for her TV Guide Magazine, I sprinted to the mailbox daily, with hopes of seeing an envelope postmarked with a big "CA". I truly felt like I would never hear from her, and had pretty much accepted that, sadly, but never regretting once my decision to donate. Everything happens for a reason and I felt that if she didn't want to reach out to me, she had her good reasons, and that's ok.

On Saturday, October 23rd, I pulled an envelope from my mailbox, postmarked from Bakersfield, CA. I barely had a moment to retrieve it from the box before my heart and eyes poured tears of joy. My hands shaking, my eyes crying and my heart filling with purpose. I haven't cried that hard since Ricky Martin came out of the closet. It was ridiculous and had I been in front of an audience, I would have died of embarrassment. It took about 3 minutes before I could even open it, I was admiring her handwriting and my mind was buzzing with curiosity as to what was inside. Quite honestly, I didn't care. She could have inserted a coupon for a free car wash and signed her name and I would have been satisfied. Just the very thought of receiving contact from her was very emotional for me. I had been waiting and wanting, but truly feeling like it might not ever happen.

I pulled out the notebook paper folded neatly inside and out popped a small photo of her taken with her husband and daughter. So, again, the tears were flowing like a river and I'm gasping for air. Look! - it's my recipient, there she is with my kidney inside of her! She's real, and that's her family right there in front of my eyes! I can't believe it's real and that this is the person that is living freely with my crazy little bean inside of her. Unbelievable!

Her letter so beautifully scripted, so precise and elegant, so gracious and kind, thoughtful and caring. It was so much more than I ever had expected.

" donating your healthy kidney to me has given me
a second chance at living a longer, more healthy, and
more fulfilled life. You, Angela are my 'Angel' and I
will always hold on to that."

"...recovery for me has been going well. My labs have
been great and the doctors are happy with my new
kidney function."

"...know how grateful and thankful I am for the best
gift I could receive... your donation was the beginning
of a chain that will save so many other lives - may
God bless you abundantly for your act of kindess."

Two pages of sincere gratitude and honest thoughts that mean more to me than I ever imagined. After reading this, I now know that this was a big deal - a very big deal. It's really real and I am amazed that I am sitting here today in New York, and my kidney is 2,861 miles on the other side of this country providing a new lease on life inside a woman that I have never met. It has finally hit me and this entire journey that all along seemed so simple is now so much more. I am thrilled and filled, with emotion. I am blessed and proud to have given this gift. I am so very excited to begin a beautiful connection with this woman that will forever be a part of me, this woman named Julia.

Again I am asking you, the reader, to please just entertain the thought for a moment as to how easy and possible it is to donate your healthy kidney to another that so desperately needs it. I encourage you all to at the very least consider the conversation with yourself. You can't imagine how meaningful this experience is, and how little sacrifice you are making to provide someone with a much deserved quality of life that most of us take for granted. Ask me how you can become a non-directed kidney donor - how you can save a life.

Until next time... Happy Halloween!

Harvey Mysel is a kidney transplant recipient and Founder of the Living Kidney Donors Network, a nonprofit organization that offers Workshops and Webinars to educate people in need of a kidney transplant about living kidney donation and help prepare them to effectively communicate their need to family members and friends. The Living Kidney Donors Network website is: and Harvey could be reached at: or follow him on Twitter

Monday, October 25, 2010

A MUST see TV show.

Tomorrow night, Tues October 26th on HDNet, 9:00 Eastern Dan Rather reports on Kidney Paired Donations, the positive impact the National Kidney Registry is having, and on Melissa Clynes transplant journey.

Here’s some background information. Melissa, now 18 had a heart transplant when she was 10 days old. When she was 13, Melissa needed a kidney transplant and her mother, Mary was her donor. Five years later, one year ago, Melissa’s kidney was failing and she needed another kidney transplant. As a result of the previous 2 transplants, Melissa was highly sensitized, meaning she developed antibodies that would significantly limit the number of people who would be able to donate to her. Melissa’s sister, Sarah wanted do donate, but was not compatible.

This past February, Mary Clynes' participated in one of the Living Kidney Donors Network webinars, “Having Your Donor Find You.” After the webinar, Mary contacted me and asked for help. We spoke many times and I educated Mary about the options that were available, one being paired kidney exchanges. I encouraged her to contact the National Kidney Registry.

The National Kidney Registry was able to “match” Melissa with an altruistic donor that was working with the Loyola University Medical Center in Maywood, IL. Within a month, Melissa was one of the first transplants in what Loyola called a “Pay It Forward” program. Five months later, true to her commitment at the time Melissa received her kidney, her sister Sarah returned to Loyola and donated a kidney in the continued “Pay It Forward” campaign.